Assessing Clinical Progression of Niemann-Pick Disease by College Students
University of Notre Dame
2011
n=64
publication
Evidence: moderate
Shin Jenny, Epperson Katrina, Yanjanin Nicole M., Albus Jennifer, Borgenheimer Laura, Bott Natalie, Brennan Erin, Castellanos Daniel, Cheng Melissa, Clark Michael, Devany Margaret, Ensslin Courtney, Farivari Nina, Fernando Shanik, Gabriel Lauren, Gallardo Rani, Castleman Moriah, Gutierrez Olimpia, Herschel Allison, Hodge Sarah, Horst Anne, Howard Mary, James Evan, Jones Lindsey, Kearns Mary, Kelly Mary, Kim Christine, Kiser Kinzie, Klazura Gregory, Knoedler Chris, Kolbus Emily, Lange Lauren, Lee Joan, Li Eileena, Lu Wei, Luttrell Andrew, Ly Emily, McKeough Katherine, McSorley Brianna, Miller Catherine, Mitchell Sean, Moon Abbey, Moser Kevin, O'Brien Shane, Olivieri Paula, Patzwahl Aaron, Pereira Marie, Pymento Craig, Ramelb Erin, Ramos Bryce, Raya Teresa, Riney Stephen, Roberts Geoff, Robertshaw Mark, Rudolf Frannie, Rund Samuel, Sansone Stephanie, Schwartz Lindsay, Shay Ryan, Siu Edwin, Spear Timothy, Tan Catherine, Truong Marisa, Uddin Mairaj, VanTrieste Jennifer, Veloz Omar, White Elizabeth, Porter Forbes D., Haldar Kasturi
Title
Assessing Clinical Progression of Niemann-Pick Disease by College Students
Hypothesis
Can trained college students accurately assess clinical records to characterize disease progression in Niemann-Pick Disease?
Conclusion
The study shows that college students can be trained to assess patient records and provide insights into the natural history of Niemann-Pick Disease.