Parents' Experiences in Pediatric Clinical Trials
Author Information
Author(s): Valerie Shilling, Bridget Young
Primary Institution: University of Liverpool
Hypothesis
How do parents experience being asked to enter a child in a randomised controlled trial?
Conclusion
Parents face complex emotional challenges when deciding whether to enroll their child in clinical trials, balancing their desire to protect their child with the uncertainties of trial participation.
Supporting Evidence
- Parents feel a strong sense of responsibility for their child's well-being when considering trial participation.
- Many parents experience anxiety and uncertainty about the risks involved in trials.
- Parents often want to be involved in the decision-making process regarding their child's participation in trials.
Takeaway
When parents are asked to let their child join a medical trial, they feel a lot of pressure because they want to do what's best for their child but are scared of making the wrong choice.
Methodology
The paper presents a narrative review of qualitative research on parents' experiences of trial recruitment.
Potential Biases
Parents' emotional states and personal experiences may bias their perceptions of trial risks and benefits.
Limitations
The study primarily focuses on qualitative data, which may not capture all perspectives.
Participant Demographics
The study discusses parents of children with various medical conditions, including serious illnesses.
Digital Object Identifier (DOI)
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