Using Patient-Generated Health Data for Managing Low Anterior Resection Syndrome
Author Information
Author(s): Monton Olivia, Smith Allister, Sabboobeh Sarah, Demian Marie, Cornish Julie, Wexner Steven D., Christensen Peter, Ghuman Amandeep, Bordeianou Liliana G., Keane Celia, Husain Syed, Gasior Alessandra, Leon Natalie, Savard Julie, Savitt Lieba R., Majgaard Margit, Sørensen Gitte Kjær, Mills Melanie, Rajabiyazdi Fateme, Boutros Marylise
Primary Institution: McMaster University
Hypothesis
What are the perspectives and experiences of LARS experts regarding the use of patient-generated health data in the management of LARS?
Conclusion
The study identifies gaps in the processes of patient-generated LARS data collection and review, suggesting that a clinical tool could help address these gaps.
Supporting Evidence
- Up to 70% of patients who undergo restorative proctectomy for rectal cancer develop long-term bowel dysfunction.
- Patient-generated health data can enhance health awareness and patient-clinician communication.
- Most experts felt that a clinical tool in the form of an online app or website would be useful for data collection.
Takeaway
Doctors and nurses think that collecting health data from patients can help them understand and manage bowel problems better, but there are challenges in using this data.
Methodology
The study used purposive snowball sampling to conduct semi-structured interviews with LARS experts and performed thematic analysis.
Potential Biases
The sample may not reflect broader colorectal surgery practices due to purposive sampling.
Limitations
The study's findings may not be applicable to low- and middle-income countries and only included healthcare providers, not patients.
Participant Demographics
Participants included 16 LARS experts from five countries, with a majority being female and having significant clinical experience.
Digital Object Identifier (DOI)
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