Challenges in End-of-Life Care for Dementia Patients in China
Author Information
Author(s): Lou Yifan, Liu Jinyu, Ding Kedong
Primary Institution: Virginia Commonwealth University, Baylor University, Case Western Reserve University
Hypothesis
What unique challenges do family caregivers face when navigating end-of-life care for persons living with dementia in China?
Conclusion
Family caregivers of persons living with dementia in China face significant emotional exhaustion and stigma, complicating their ability to navigate end-of-life care.
Supporting Evidence
- Caregivers reported emotional exhaustion due to decision-making pressures.
- Stigma towards dementia patients hinders caregivers from seeking help.
- Long waiting lists and high costs for dementia-specific end-of-life resources were major challenges.
Takeaway
Caregivers for people with dementia in China find it really hard to get the right help when their loved ones are dying because of a lot of stress and stigma.
Methodology
In-depth interviews were conducted with 17 caregivers and 5 primary care doctors in Shanghai, China, analyzed using a hybrid grounded theory model.
Limitations
The study may not represent all caregivers in China due to the specific location and sample size.
Participant Demographics
Caregivers of persons living with dementia in Shanghai, China.
Digital Object Identifier (DOI)
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