Quality of Life of Adult Retinoblastoma Survivors in the Netherlands
Author Information
Author(s): Jennifer van Dijk, Saskia M Imhof, Annette C Moll, Peter J Ringens, Peggy T Cohen-Kettenis, Frank Rijmen, Jaap Huisman
Primary Institution: VU University Medical Center Amsterdam
Hypothesis
Hereditary RB survivors have poorer QoL than non-hereditary RB survivors.
Conclusion
Adult RB survivors generally experience a good overall QoL, but report more mental health issues compared to a healthy reference group.
Supporting Evidence
- RB survivors scored significantly lower on the mental health subscale compared to the reference group.
- Hereditary RB survivors reported lower general health than non-hereditary survivors.
- Childhood bullying was a predictor for worse QoL in multiple SF-36 subscales.
Takeaway
This study looked at how people who survived a type of eye cancer feel about their lives. They found that while most are doing okay, many still feel sad or anxious.
Methodology
A population-based cross-sectional study using the SF-36 questionnaire and semi-structured interviews.
Potential Biases
Potential bias from non-participation of those with poorer QoL.
Limitations
Results may not apply to more recently treated survivors; non-participants may have poorer QoL; ceiling effects in SF-36 subscales.
Participant Demographics
Participants were aged 18 to 35 years, with 61% female representation.
Statistical Information
P-Value
p<0.05
Statistical Significance
p<0.01
Digital Object Identifier (DOI)
Want to read the original?
Access the complete publication on the publisher's website