Understanding and Addressing Community-Based Palliative Care Refusals: A Multi-Perspective Study
2024

Understanding Why Older Adults Refuse Palliative Care

Sample size: 27 publication Evidence: moderate

Author Information

Author(s): Sheldon Kira, Luth Elizabeth

Primary Institution: Rutgers University--New Brunswick

Hypothesis

What are the reasons that eligible individuals refuse community-based palliative care services?

Conclusion

Many older adults decline palliative care due to misconceptions about its purpose and unclear benefits.

Supporting Evidence

  • More than half of older adults have chronic conditions that affect their quality of life.
  • Community-based palliative care is part of Medicare Advantage plans to help seriously ill individuals.
  • Three main reasons for refusal were identified: misconceptions about end of life, unclear benefits, and reluctance to change current care.

Takeaway

Some older people don't want palliative care because they think it's only for when you're about to die, or they don't see how it can help them.

Methodology

Semi-structured interviews and focus groups were conducted with Medicare Advantage plan members and caregivers who refused palliative care, as well as palliative care team members.

Limitations

The study may not capture the perspectives of all individuals who refuse palliative care.

Participant Demographics

Medicare Advantage plan members and caregivers, primarily older adults with chronic conditions.

Digital Object Identifier (DOI)

10.1093/geroni/igae098.4269

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