Consent for Genomic Epidemiology in Developing Countries: Added human subject protection also needed
2007
Consent for Genomic Epidemiology in Developing Countries
publication
Author Information
Author(s): Reinhard Robert
Primary Institution: San Francisco Vaccine Trials Unit
Conclusion
Stronger protections and benefits for participants are necessary alongside improved consent in genomic epidemiology.
Supporting Evidence
- Privacy protections under HIPAA have exceptions that may not apply internationally.
- Safeguards should include restrictions on vulnerable populations and prohibitions on misuse of data.
Takeaway
When collecting genetic information, it's important to protect people's privacy and make sure they benefit from the research.
Potential Biases
There are risks of stigmatization and misuse of genetic data.
Digital Object Identifier (DOI)
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