Studying Parkinson's Disease Progression and Quality of Life
Author Information
Author(s): Morris Meg E, Watts Jennifer J, Iansek Robert, Jolley Damien, Campbell Donald, Murphy Anna T, Martin Clarissa L
Primary Institution: The University of Melbourne
Hypothesis
What is the natural history of disease progression in the impairment, activity, participation, well-being, and quality of life domains over a 12 month period in a sample of people receiving inter-disciplinary services from the VCPP?
Conclusion
The study aims to identify valid clinical and economic measures for quantifying the natural history and progression of Parkinson's disease.
Supporting Evidence
- Parkinson disease affects more than 4 million people worldwide.
- The study will provide high-quality cost measurements and comprehensive health care utilization data for Parkinson's disease by disease stage.
- The Victorian Comprehensive Parkinson Program provides a unique opportunity for clinical research.
Takeaway
This study is trying to understand how Parkinson's disease affects people over a year and how to measure it better.
Methodology
This is a prospective cohort study involving primary and secondary collection of clinical, health-related quality of life, and cost data over 12 months.
Limitations
Participants may be excluded if they are non-ambulatory or have significant cognitive impairments.
Participant Demographics
Participants will be newly referred persons with idiopathic Parkinson's disease, aged over 60.
Digital Object Identifier (DOI)
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