Dementia Programs for Persons with Intellectual or Developmental Disabilities (IDD) and Their Care Partners
2024

Dementia Programs for Individuals with Intellectual Disabilities

publication Evidence: moderate

Author Information

Author(s): Barton Kelli

Primary Institution: University of Missouri-Kansas City Institute for Human Development

Hypothesis

Can evidence-based dementia programs be effectively implemented for individuals with intellectual or developmental disabilities (IDD) and their care partners?

Conclusion

Evidence-based dementia programs can benefit the IDD population and their care partners, but modifications are necessary for accessibility.

Supporting Evidence

  • Behavioral symptom-related severity among individuals with IDD decreased.
  • Behavioral symptom-related distress among care partners decreased.
  • Education for staff and the community was identified as a significant benefit.

Takeaway

This study shows that programs to help people with dementia can also help those with intellectual disabilities and their caregivers, but we need to make sure everyone can use them.

Methodology

A mixed-method approach was used, including semi-structured partner interviews and regular meetings.

Limitations

Protocol modifications are needed for accessibility, which may limit the generalizability of the findings.

Participant Demographics

Individuals with IDD and their care partners, including both formal and informal caregivers.

Statistical Information

P-Value

p=0.07 and p=0.14

Statistical Significance

p=0.07 and p=0.14

Digital Object Identifier (DOI)

10.1093/geroni/igae098.1687

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