Completeness of cancer registration in England and Wales: an assessment based on 2,145 patients with Hodgkin's disease independently registered by the British National Lymphoma Investigation
1993

Completeness of Cancer Registration in England and Wales

Sample size: 2145 publication Evidence: moderate

Author Information

Author(s): A.J. Swerdlow, A.J. Douglas, G. Vaughan Hudson, B. Vaughan Hudson

Primary Institution: London School of Hygiene and Tropical Medicine

Hypothesis

What is the completeness of cancer registration for Hodgkin's disease in England and Wales?

Conclusion

The study found that cancer registration for Hodgkin's disease in England and Wales was about 90% complete at the regional level.

Supporting Evidence

  • 88% of Hodgkin's disease cases were recorded in the national register.
  • Completeness of registration was estimated at 89.7% for the national register and 92.9% for regional registers.
  • Regional variation in registration completeness was significant, with some areas below 90%.

Takeaway

This study looked at how well cancer cases are recorded in England and Wales, finding that most cases of Hodgkin's disease are registered, but some are missed.

Methodology

The study compared data from the British National Lymphoma Investigation with national and regional cancer registers to assess registration completeness.

Potential Biases

There may be regional variations in registration completeness that could affect the results.

Limitations

The study focused only on Hodgkin's disease, which may not represent all cancers, and relied on data from specific hospitals.

Participant Demographics

The study included 1,378 males and 767 females with Hodgkin's disease.

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