Understanding the Needs of Informal Caregivers of People Experiencing Dementia as Identified on Social Media
2024

Understanding the Needs of Caregivers for People with Dementia on Social Media

Sample size: 500 publication Evidence: moderate

Author Information

Author(s): Flanagan Jane, Connolly Maureen, Coakley Amanda, Fugate Matthew (Brent), Prud’hommeaux Emily, Young Colin

Primary Institution: Boston College

Hypothesis

This study aimed to understand the caregivers’ concerns posted on social media and determine if the responses were supportive and accurate.

Conclusion

The study found that a majority of responses to caregiver posts on social media were supportive and accurate.

Supporting Evidence

  • 73% of responses to initial posts were supportive.
  • 73% of responses were accurate.
  • The study identified five key themes related to caregiver concerns.

Takeaway

Caregivers of people with dementia often share their worries online, and most of the replies they get are helpful and correct.

Methodology

The study used a qualitative descriptive design and thematic analysis on social media posts, along with a Delphi method for a subset of posts.

Participant Demographics

Caregivers of people experiencing dementia, with a focus on social media interactions.

Digital Object Identifier (DOI)

10.1093/geroni/igae098.1930

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