Exploring Serious Illness Care Experiences Among Black Chicagoans’ Caregivers: A Qualitative Inquiry
2024
Exploring Serious Illness Care Experiences Among Black Chicagoans’ Caregivers
publication
Author Information
Author(s): Wilder Jocelyn, Draw Kandis, Downing Kimberly
Primary Institution: NORC at the University of Chicago
Hypothesis
This study investigates the nuanced perspectives on serious illness care among Black Chicagoans.
Conclusion
The study reveals diverse and complex narratives surrounding end-of-life care among Black caregivers, highlighting the need for culturally competent care.
Supporting Evidence
- Palliative and hospice services enhance quality of life and decrease depression.
- Only 7.6% of hospice patients were Black, indicating disparities in care.
- Participants shared experiences that shaped their attitudes towards hospice and palliative care.
- Discussions highlighted limited knowledge of available end-of-life care services.
- Thematic analysis identified key domains like quality of care and decision-making related to death.
Takeaway
This study talks about how Black caregivers feel about end-of-life care and shows that they have different experiences and needs.
Methodology
The study used focus groups and in-depth interviews with an inductive thematic approach.
Participant Demographics
Black Chicagoans who are caregivers.
Digital Object Identifier (DOI)
Want to read the original?
Access the complete publication on the publisher's website