TRAJECTORIES OF PAID AND FAMILY CARE TO SUPPORT ADULTS WITH DISABILITIES BY RURALITY
2024

Care for Older Adults with Disabilities: Paid vs. Family Care

Sample size: 2549 publication

Author Information

Author(s): Katherine Miller, Yang Yang, Jennifer Reckrey, Katherine Ornstein, Jennifer Wolff

Primary Institution: Johns Hopkins University

Hypothesis

Differences in how paid and family care intersect by rurality are not well understood in the years immediately prior to death.

Conclusion

Rural residents rely more on family caregivers compared to urban residents, especially in the years leading up to death.

Supporting Evidence

  • 75% of the sample relied on consistently high family care.
  • The share of family caregiving decreases as paid care increases.
  • Rural residents have a greater reliance on family caregivers compared to urban residents.

Takeaway

Older adults with disabilities often get help from family, but those in cities are starting to use more paid help as they get closer to death.

Methodology

We used group-based multiple trajectory models to analyze care use in the five years prior to death, stratified by rurality.

Participant Demographics

Community-dwelling National Health and Aging Trends Study respondents living with functional or cognitive limitations, with 481 rural and 2068 urban participants.

Digital Object Identifier (DOI)

10.1093/geroni/igae098.1694

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